National Foundation for Ectodermal Dysplasia’s “Parameters of Oral Health Care for Individuals Affected by Ectodermal Dysplasia Syndromes.”2 Refer to that document for care of children with ectodermal dysplasia

Purpose The American Academy of Pediatric Dentistry (AAPD) recognizes that pediatric dentists are uniquely qualified to manage the oral health care needs of children with heritable dental developmental anomalies. These children have multiple, complex problems as their dental conditions affect both form and function and can have significant psychological impact. These conditions may present early in life and require both immediate intervention and management of a protracted nature, including coordination of multi-disciplinary care. The AAPD’s Guideline on Management of Dental Patients with Special Health Care Needs1 alludes to this patient population but does not make specific treatment recommendations for the oral manifestations of such diagnoses. This guideline is intended to address the diagnosis, principles of management, and objectives of therapy of children with heritable dental developmental anomalies rather than provide specific treatment recommendations. This guideline will focus on the following heritable dental developmental anomalies: amelogenesis imperfecta (AI), dentinogenesis imperfecta (DI), and dentin dysplasia (DD). Ectodermal dysplasia has been thoroughly studied and reported in the National Foundation for Ectodermal Dysplasia’s “Parameters of Oral Health Care for Individuals Affected by Ectodermal Dysplasia Syndromes.”2 Refer to that document for care of children with ectodermal dysplasia.